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Kegiatan Awal Tahun di RS Dharmais bersama Lions Club Metteyya Diamond

Tanggal acara :
8 Januari 2020

Lokasi :
RS Dharmais 

Bersama :
Lions Club Metteyya Diamond

Peserta :
Anak-anak dengan kanker 

Deskripsi / Tujuan Acara :

(08/01) Selamat tahun baru semua! Dalam mengawali tahun 2020 kami YKAI bersama dengan Lions Club Jakarta Selatan Centennial Metteyya Diamond melakukan penghiburan untuk melihat senyum semangat 2020 anak-anak dengan kanker di RS Dharmais.

Dalam rangka mendukung program Lions Club International yakni “Peduli Terhadap Childhood Cancer”, mereka mengadakan kegiatan visiting untuk menghibur anak-anak dengan kanker. Kegiatan yang berlangsung sangat menghibur anak-anak beserta para keluarga sehingga suatu kegiatan seperti ini cukup penting dalam mengembalikan senyum mereka. Kami harap di kedepan hari semakin banyak pemerhati yang peduli dalam memperhatikan anak-anak dengan kanker

Penghiburan yang dilakukan dari Lions Club adalah Puppet Show. Anak-anak pejuang kanker RS Dharmais juga sudah menunjukkan betapa antusiasnya ketika kita menghampiri ke tiap-tiap ruangan pasien dan menginformasikan bahwa akan ada puppet show di hari itu. Terima kasih banyak Lions Club Metteyya Diamond! sampai berjumpa lagi ya!

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Study links frozen embryo transfer to higher childhood cancer risk

(CNN) Children born after the use of frozen embryo transfer were at higher risk of childhood cancer, according to a new study, but the risk remains low.

The study, published in the medical journal JAMA on Tuesday, looks at babies born in Denmark, a country with one of the highest rates of assisted reproductive technology. In 2018, nearly 10% of all children were born through some form of fertility treatment.
 
Scientists already knew that children born with the help of fertility treatments faced increased health risks. The children are more likely to have a low birth weight, to be born prematurely and to have some birth defects, earlier studies have shown. Less is known about the long-term health consequences of such procedures, the authors said.
 

This study looked at data from the Danish Medical Birth Register, the Danish Cancer Registry, and the Danish Infertility Cohort that included 1,085,172 children born in Denmark between January 1996 and December 31, 2012. Of those children, 2,217 were diagnosed with cancer.

When scientists compared the number of children born to fertile parents with those born using some form of assistance, they noticed an elevated risk of childhood cancers in the cases where frozen embryos were used.
 
Specifically, the rate of childhood cancer was 17.5 per 100,000 for children born to fertile women and 44.4 per 100,000 for children born using frozen embryo transfer.
 
There were no statistically significant cancer associations with the other types of fertility treatments the scientists looked at in this study. The cancer risk wasn’t any higher for children born to parents who used fertility drugs, IVF or intracytoplasmic sperm injection, among other methods.
 
“I think this is interesting and of potential concern, but you have to look at this study in perspective,” said Dr. Jeffrey Goldberg, an OB-GYN and reproductive endocrinologist at Cleveland Clinic who was not involved with the study. “Fortunately, child cancers are pretty rare.
 
“It is something that warrants further evaluation, but there are a couple explanations.”
Goldberg said it’s important to keep in mind that the study started in 1996 and there have been a lot of changes in technology and in protocol in the lab and in the stimulation protocol since then, which could have an impact if the study were run again on more recent data.
 
Women who undergo this procedure using frozen embryos may also be at higher risk if they’re older with older partners, and that can increase cancer risks. If the mother is obese, weight could also pose an increased risk that a child could develop cancer, Goldberg said.
“It kind of raises more questions than it answers,” Goldberg said. “I think it was reasonable to ask the question in the first place in this study.”
 
Most earlier studies did not find an association between cancer and frozen embryos. Although one prior study did see a link, all of the studies were based on much smaller patient populations.
This study had a large number of patients, but it is unclear if the results would be the same if scientists looked at patients from other countries with different racial and ethnic characteristics.
The study is also centered on retrospective data, so researchers weren’t able to ask why there might be an elevated cancer risk with this procedure.
 
Goldberg said parents shouldn’t worry.
 
“A 2.4 fold increase is clinically significant, but these are very small numbers, and this is based on older data going back to ’96 and some of the things here may not be applicable now,” Goldberg said. “I wouldn’t want this to set off alarm bells.”
 
(Source:https://edition.cnn.com/2019/12/10/health/cancer-frozen-embryos-ivf-study/index.html, diakses pada tanggal 11 Desember 2019)
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Tukar kado Akhir Tahun Bersama LIEVE

Tanggal acara :
23 Desember 2019

Lokasi :
Rumah mama Al 

Bersama :
LIEVE 

Peserta :
Anak-anak dengan kanker beserta keluarga

Deskripsi / Tujuan Acara :
(23/12) Terima kasih untuk LIEVE dan team yang telah menyempatkan waktu dan kebaikkan hatinya untuk berbagi dengan anak – anak kanker beserta keluarga. 

Berawal dari inisiatif LIEVE akan keperduliannya terhadap anak – anak dengan kanker. Production House ini, mengontek kami untuk mau bertemu dan membuat acara dengan konsep tukar kado yang disediakan oleh LIEVE sendiri. 

Acara pun berjalan sangat menyenangkan karena dimeriahkan oleh beberapa guru – guru “bule” yang mengajak bermain games seperti Stop & Go dan lainnya. Untuk melihat cuplikan acara kami dapat langsung saksikan di channel layar kaca digital kalian di https://www.youtube.com/channel/UC2Wrj3d4W6BrUnli4uH0JMA?view_as=subscriber . Jangan lupa like dan subscribenya yah !

 

 

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Apple Academy Sharing Happiness with Cancer Warrior in RSAB Harapan Kita

Date :
 11 December 2019

Location :
RSAB Harapan Kita – South Jakarta

Time : 10am – 12pm

A group of Apple Developer Academy @BINUS students is working on a mobile app that helps cancer patients to manage the side effects of chemotherapy. Not to mention, Apple’s founder, Steve Jobs, was also a cancer patient, which motivates them even more.

We YKAI helped to connect the students to their target users, chemotherapy patients and their carers.

YKAI and the students visited chemotherapy patients in Harapan Kita hospital and held fun activities; such as origami competition, singing competition, patient interviews, and even focus group discussions with the nurses.

“We are very grateful for the opportunity to talk, exchange laughs, and have a good time with the patients. Most importantly, we were able to genuinely connect with the patients by listening to their ups and downs during chemotherapy” said Aland, an Apple Developer Academy student.

YKAI hopes that this event will lead to the birth of the first Indonesian mobile app that can truly help cancer patients.

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YKAI & Antara Community: ” Yes, We Can, Sir ! “

Tanggal acara :
09 November 2019

Lokasi :
Menara Batavia

Bersama :
Antara Community

Peserta :
-Anak-anak pejuang kanker

-Orang tua anak pejuang kanker

Deskripsi / Tujuan Acara :
Acara ini terbentuk dari inisiatif “Antara Community” yang mau berbagi terutama dalam mengajarkan “meditasi” dan bersenang senang bersama dengan YKAI terutama anak-anak dengan kanker. “An act of kindness by giving and sharing love with YKAI” adalah judul tema yang mereka ambil. Dengan judul “Yes We Can, Sir!” mengajak para anak-anak beserta orang tua pasien untuk tetap semangat dalam menghadapi suka dan dukanya kehidupan!